Crystal Lake resident hopes to ‘cap the copay’ on high-price specialty drugs
Ryan, a 16-year-old from suburban Chicago, was diagnosed with epilepsy eight years ago. He suffers from a variety of different seizures, making it that much more difficult to find medications, and the right combination of medications, to control them. Ryan currently takes six different medicines, three times a day, which can be very straining, both physically and mentally.
Adding to this burden, costs for a single medication can sometimes be up to $2,000. While some of his medications can be substituted for less expensive, comparable medications, others cannot.
Over the span of six months, copays for Ryan’s family can reach up to $10,000, and this does not include visits to the doctor or additional costs that factor into caring for a child with a chronic illness. The family’s deductible for the year in 2014 was $3,000, and was met by January due to the steep cost of a single medication for Ryan.
It is hard enough for this family to manage the various medical issues that come with this disease, but extremely high out-of-pocket costs for medications to control his seizures adds an additional dimension of stress and hardship.
Read more about Ryan’s story in the Northwest Herald.
Email your legislature with an easy online submission form.